Privacy Policy

1. Introduction

Patient Voice Aotearoa is committed to protecting your privacy and handling your personal information in accordance with the Privacy Act 2020 of New Zealand. This policy explains how we collect, use, disclose, and protect your personal information.

2. What Information We Collect

We may collect the following types of personal information:

Name, contact details, and demographic information
Health-related information you choose to share
Feedback, survey responses, and advocacy stories
Website usage data (e.g. IP address, browser type)

3. Purpose of Collection

We collect personal information to:

Facilitate patient advocacy and amplify lived experiences
Improve our services and digital platforms
Communicate updates, campaigns, and opportunities for engagement
Comply with legal obligations and ensure data integrity

4. How We Collect Information

We collect information:

Directly from you via forms, surveys, or email
Through your use of our website and digital tools
From third parties with your consent

5. Storage and Security

We take reasonable steps to protect your personal information from loss, unauthorised access, and misuse. Data is stored securely using encrypted systems and access is restricted to authorised personnel.

6. Disclosure of Information

We may share your information:

With trusted partners and collaborators for advocacy purposes
When required by law or to prevent harm
With your explicit consent for public storytelling or campaigns

We do not sell or rent your personal information to third parties.

7. Access and Correction

You have the right to:

Request access to the personal information we hold about you
Ask for corrections if you believe the information is inaccurate

To make a request, please contact us at mylifematters@gmail.com.

8. Cookies and Analytics

Our website uses cookies to enhance user experience and collect anonymous analytics data. You can manage cookie preferences through your browser settings.

9. Privacy Breaches

In the event of a notifiable privacy breach, we will inform affected individuals and report the breach to the Office of the Privacy Commissioner as required by law.

10. Changes to This Policy

We may update this policy from time to time. The latest version will always be available on our website.

11. Contact Us

If you have any questions or concerns about this policy or your personal information, please contact:

Privacy Officer at Patient Voice Aotearoa Email: mylifemattersnz@gmail.com Phone: 022 097 5899